Public and patient involvement (PPI) panel embedded across all stages of the AAC evidence synthesis¶

Element · All elements
Evidence · no claims cited

Description¶

The protocol establishes a PPI panel of AAC-familiar stakeholders to support the review from the outset. The protocol states: "A PPI panel has been established to support this qualitative evidence synthesis across all stages of the review." The group comprises a primary school principal, teacher, special needs assistant, speech and language therapist, parent and person with lived experience. Members reviewed and refined the research question and inclusion criteria, advised on implementation issues of community importance, will review synthesis outcomes for relevance and reliability, and will co-write a lay summary and guide dissemination.

Design Implications¶

Context¶

Requirements¶

• Panel members familiar with AAC representing user, family, educator and professional perspectives
• Adherence to guidance for including the unique voice of the child in the PPI group

Constraints¶

• A reviewer suggests adapting terminology such as PPI toward an educational framing, for example a Research Advisory Panel or Research Advisory Group, given the review's educational focus

Target Learners¶

• AAC users and their families
• Educators and healthcare staff involved in AAC support

Target Learning Goals¶

• Ensuring synthesis findings reflect lived experience and are relevant and reliable for the AAC community

Claims¶

Related Elements¶

• Registered qualitative evidence synthesis protocol on AAC use in school (PROSPERO CRD420251229480)
• CCSR steering committee as multi-partisan stakeholder advisory structure

Examples¶

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Key Sources¶

• Byrnes C, Moran G, Clarke MT, Caron J, Smith EM, Galvin R, Gallagher AL. (2026). Experiences of Augmentative and Alternative Communication use in School: A Qualitative Evidence Synthesis Protocol. HRB Open Research. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13550906/