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Rare Knowledge Mining Methodological Framework (RKMMF) for developing rare-disease clinical training

Design · All designs
Evidence · 1 claim (1 for) · 1 study (1 design), q2 · 0 of 1 report an effect size · 1 claim rests on one study

Description

The RKMMF is a phased methodological framework the article uses to structure development of clinical evaluator training in rare disease care. It proceeds through a preliminary needs assessment — described as "an essential step prior to implementing RKMMF-informed workshops" — followed by knowledge mining with expert content leads, group sharing with medical experts to validate findings, external validation via pre-workshop surveys adapted from the Kirkpatrick model, and knowledge translation with post-workshop evaluation. The article demonstrates it as "a scalable approach for capacity-building in rare disease care".

Design Implications

Context

Requirements

  • A needs assessment must be conducted prior to implementing RKMMF-informed workshops to align the intervention with the target audience's real-world challenges

Constraints

  • Demonstrated in the Canadian SMA clinical context with PTs, OTs and nurses; the article notes some insights were directly related to Canada

Target Learners

  • clinical evaluators: physiotherapists, occupational therapists, and neuromuscular nurses

Learning Goals

  • selecting, administering and interpreting clinical outcome assessments in spinal muscular atrophy

Claims

Examples

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Key Sources

  • Osman Homira, Masnata Maria, Adamji Zainab, Rodrigue Xavier, Nguyen Cam-Tu Émilie, Slayter Jeremy, Beattie Erin, Lintern Stacey, Lochmuller Hanns, O'Connell Colleen, Gagnon Cynthia, Warman-Chardon Jodi. (2026). Strengthening clinical capacity in spinal muscular atrophy: Developing and implementing training on clinical outcome assessments. Journal of Neuromuscular Diseases. https://doi.org/10.1177/22143602261416298
Page metadata
Field Value
type design
id rkmmf-rare-knowledge-mining-framework
title Rare Knowledge Mining Methodological Framework (RKMMF) for developing rare-disease clinical training
description The RKMMF is a phased methodological framework the article uses to structure development of clinical evaluator training in rare disease care.
status review
generated by process:settle-candidates on 2026-11-04
trust unverified — no one has confirmed this page's content
sources 1 — osman-homira-2026

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